It has been a long time since our last post! I guess that's because for the most part things are going great for our Tornado Tillie!
This picture is at her 7th birthday party! Tillie wanted a clam bake for a party, so Emily pulled together a clam bake of sorts.. with alternatives for those of us non seafood eaters. It was fun! Tillie found a caterpillar that she held on to the whole afternoon! In fact, just recently she got a note sent home from school because she got into an argument with the playground teacher because she wanted to bring a caterpillar inside she found out on the playground....Oh Tillie!! You crack me up! :)
More pictures from her birthday party!
Halloween 2013 at the clinic with Katie and Dr. Irwin!
If you look back to a post from March 2013 you will read about the Scott Stairclimb event for the Leukemia/Lymphoma society and our friend Abbey who participated. She did the climb again this year and here she is with Tillie and Ravis at Wal Mart raising money! Thank you Abbey for your participation!
A side note here...you can see Tillie's hair is now quite curly! Her hair has grown back very curly..like a nice hot roller set!!
Some Christmas time pictures...making cookies at Grandma's...
Tillie has been struggling with skin issues and in January we had her tested for food allergies. We knew she was allergic to walnuts and sometime last fall Tillie seemed to have a reaction to pecans.. she had had them in the past and seemed fine. She went to an allergist and it was determined pecans were now an allergen. The testing in January was through a naturopathic doctor and was more thorough. The result was she has a lot of food allergies.. the list is broken into 3 categories of low, moderate and avoid. For 3 months she was to avoid the moderate and above foods and her skin cleared up quite well! There are only 3 foods in the avoid...walnuts, bamboo shoots and of all things, vanilla! Do you know how many foods have vanilla??? We have found a substitute though for foods that get cooked...WHISKEY! Yes, whiskey! We have used it in pancakes and chocolate chip cookies! Tillie has been very good at saying "I can't have that" and does it with grace. I am very impressed with her! That's one thing about a child who has gone through a life threatening illness. There is, in some situations, a maturity that you don't normally see in a child.
Emily has tested some of the moderate foods and Tillie has done ok with some of them. Her main symptoms are either rashes or she sneezes and coughs and needs some Benedryl. Fortunately there have been no breathing problems, but they are prepared if need be.
This is Easter 2014. Tillie and Ravis and their cousin Blake who is now 21 months! Time is flying fast for our grandchildren!
So as you can see, Tillie is doing well. She has bi-monthly blood draws and each year the time between appointments will be spread out. I am posting a link to a blog Emily has started. She is a strong Mamma who has impressed us all with her strength and grace throughout this whole journey! Once again we are so grateful to our friends and prayer warriors!
As you read Emily's post, please pray for her and Anthony!
Blessings to all of you!
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