Tillie has finished her first year of maintenance treatment!! One more year to go! In June, Tillie's hair started to come out again..mostly on top and a little on the bottom. The hair loss has been the hardest for Emily as it is such a stark reminder of Tillie's cancer fight! Fortunately Tillie seems to be unaffected. Tillie starts kindergarten next month and I asked the doctor how kids deal with perhaps being teased about it and he said generally at that young age it's not a problem..and if needed, the social worker and child life specialist will visit the classroom and talk to the kids about what's going on with Tillie.
Here are Tillie and Ravis with their Great Grandma Linda! (Reg's Mom) They got to visit recently! This is such a precious picture!
Tillie had a little hiccup in July! She caught a bug with a fever of 102 degrees. If she gets a fever of 100 or more, she needs to go to the clinic or ER. Because it was late at night it was a trip to the ER. I drove up to Tacoma to support Emily....that was a fun drive as it was during one of our rare thunder and lightening storms. Tillie was not admitted, so at 4AM, we went back to the Maier's home. Tillie had an appointment that afternoon and once again, she amazed her doctor! A brief history, when Tillie was first diagnosed, her numbers were so bad the doctor told Emily and Anthony that an adult would be dead and Tillie should have been unconsious at the very least..well she wasn't...she was directing the whole show!! So, what was exciting about this latest episode was that instead of her white blood count and neutraphil count going down, they went up! Just like they would in a healthy kid! They did their job to fight the infection. That was cool! So, the bug ran it's course, Ravis got it next and now both are just fine!
As mentioned above, Tillie starts kindergarten in September. It's all day, 5 days a week! A whole new adventure! She has been practicing her letters and is getting quite good. For those of us who went to school a while ago, kindergarten is more like first grade in our day.
More to come once school starts..............
